Individuals are tracking a variety of health-related data via a growing number of wearable devices and smartphone apps. More and more data relevant to health are also being captured passively as people communicate with one another on social networks, shop, work, or do any number of activities that leave “digital footprints.” Self-tracking data can provide better measures of everyday behavior and lifestyle and can fill in gaps in more traditional clinical or public health data collection, giving us a more complete picture of health.
We at the Health Data Exploration project are creating a Network of innovators in PHD to catalyze the use of personal data for the public good. This Network will bring together companies, researchers, and strategic partners to strategize, coordinate, and experiment with using PHD to understand health.
We need the help of citizen scientists to take this project forward. How do you think personal health data can provide insights into health? What would make you more willing or less willing to share your own data? What concerns or suggestions do you have?